Diana Wilkie

Diana Wilkie, PhD, RN, FAAN

Professor; Prairieview Trust – Earl And Margo Powers Endowed Professor; Director, Center For Palliative Care Research & Education; Director, Florida-California Cancer Research, Education And Engagement (CaRE2) Health Equity Center

Department: Biobehavioral Nursing Science
Business Phone: (352) 273-6401
Business Email: diwilkie@ufl.edu

About Diana Wilkie

Diana Wilkie, PhD, RN, FAAN, joined UF in 2015 as the Prairieview Trust – Earl and Margo Powers Endowed Professor in the Department of Biobehavioral Nursing Science. She is also the director of the Center for Palliative Care Research & Education and co-director of the Florida-California Cancer Research, Education and Engagement (CaRE2) Health Equity Center.

Dr. Wilkie, a member of the National Academy of Medicine, has devoted her research program to cancer and sickle cell pain management, palliative care, and end-of-life issues, and reducing health disparities. Her research builds on pain problems she recognized through her clinical experience as a staff nurse, hospice nurse, and an oncology clinical nurse specialist. Her research has been continuously funded since 1986 from numerous organizations such as the National Institutes of Health, the American Cancer Society, Patient Centered Outcomes Research Institute, and the Robert Wood Johnson Foundation — totaling nearly $90 million. This funding supports her biobehavioral and informatics research focused on pain, symptom science, and palliative care in populations spanning the life cycle with special focus on adults, older adults, and reducing health disparities.

Her clinical work with cancer patients led to the development of a tablet-based pain report system that allows a patient to describe his or her pain. The system automatically generates a report for the clinician with suggestions for appropriate interventions. The system also provides multimedia education on pain management for the patients and their family members. Wilkie recently completed a randomized clinical trial testing the effects of computerized pain tools on pain control for cancer patients receiving hospice care. She also tested a Turkish version of the pain report tool in Turkey with patients recovering from lung cancer surgery. She also recently completed a study focused on advanced care planning for African Americans with dementia, three studies focused on understanding the mechanisms and genomics that contribute to the pain in sickle cell disease with a goal of improving outcomes for adults with sickle cell disease, and a multi-site, randomized clinical trial of dignity therapy for elderly outpatients with cancer who received palliative care. Study outcomes focused on key spiritual-related patient outcomes (dignity impact, existential tasks, and cancer prognosis awareness).

Numerous currently funded studies include a randomized control trial of an internet-based reproductive health education intervention for individuals with sickle cell disease or sickle cell trait. The long-term goal of her research is to help clinicians effectively combine pharmacologic and nonpharmacologic therapies for management of pain as part of respectful care for individuals and families facing serious illness such as cancer and sickle cell disease.

Wilkie is a fellow of the American Academy of Nursing and served for five years as an American Cancer Society professor of oncology nursing. She has authored or co-authored more than 310 scholarly publications and 300 abstracts. She serves as a reviewer on a number of journals, including the Journal of Palliative Medicine, Cancer Nursing, Journal of Pain & Symptom Management, and Journal of Pain.

Wilkie has mentored more than 186 individuals including 41 doctoral students, 13 postdoctoral scholars, and 9 junior faculty. Of these individuals, 66 identified as underrepresented minorities (16 with PhD/MD/PharmD; 12 of them have received postdoctoral funding for their research). She also has mentored 31 international students or scholars. She recently completed the University of Florida’s CTSI sponsored Mentorship Academy training and has a strong commitment to mentoring biobehavioral scientists who are focused on pain and eliminating health disparities.

Accomplishments

Elected member
2019-Current · National Academy of Medicine (Formerly Institute of Medicine)
Elected member
2012-2019 · Institute of Medicine
Scholar Award
2012-2013 · University of Illinois
Information Technology Award for Clinical Nursing Applications for PAINReportIt®
2005 · Sigma Theta Tau International Honor Society of Nursing
Advancement of Science Award
2004 · Midwest Nursing Research Society End of Life and Palliative Care Research Section
Distinguished Alumna Award
2004 · Mesa College
10th Annual Distinguished Nurse Scholar Award
2002 · University of Detroit Mercy McAuley School of Nursing
2002 Pinnacle Awards: Computer-Based Professional Education Technology Award for Toolkit for Nursing Excellence at End-of-Life Transitions
2002 · Sigma Theta Tau International Honor Society of Nursing
Media Awards, Honorable Mention Award: TNEEL
2002 · American Academy of Nursing
R. Davilene Carter Presidential Prize for Best Paper
2000 · American Association for Cancer Education Annual Meeting
First Annual Research Award
1997 · National Hospice Foundation
Outstanding Public Service Award
1996 · University of Washington
Elected Fellow
1995 · American Academy of Nursing
Washington Division Professor of Oncology Nursing
1993-1998 · American Cancer Society
Carol A. Lindeman Award for a New Researcher
1991 · Western Society for Research in Nursing
Dissertation Award
1991 · Region One (13 Western USA States), Sigma Theta Tau International
Doctoral Class Commencement Speaker
1990 · University of California, School of Nursing
First Place, Doctoral Nursing
1990 · Graduate Students Association Research Award
Junior Investigator Travel Award
1990 · American Pain Society
Trainee Fellowship
1990 · International Pain Foundation, VIth World Congress on Pain
First Place, Doctoral Nursing
1989 · Graduate Students Association Research Award
Nominee – Adria Excellence in Writing Award in Research
1989 · Oncology Nursing Society
Trainee Fellowship
1988 · International Pain Foundation and the American Pain Society, Joint Meeting of the Canadian Pain Society and the American Pain Society
Trainee Fellowship
1987 · International Association for the Study of Pain, Vth World Congress on Pain
Fellow
1986-1990 · National Cancer Institute Predoctoral Fellowship Award (1F32CA08256)
Trainee
1985-1986 · Professional Nursing Title II Traineeship (2 A11 NU00289-10)
Nominee, Schering Excellence in Clinical Research Award
1985 · Oncology Nursing Society
Inductee
1984 · Sigma Theta Tau, Nursing Honor Society
Recipient
1982-1984 · American Cancer Society Master’s Scholarship Grant
Recipient
1972-1976 · Gates Foundation Scholarship

Teaching Profile

Courses Taught
2017-2020
NGR7970L Adv Nursing Project
2017-2021
NGR7940L Residency in Adv Nurs
2017-2019,2022
NGR6905 Individual Study
2018-2019
NUR4905 Individual Study
2018
PHC7918 Independent Study
2015-2018
NGR7979 Advanced Research
2017-2018
NGR7980 Research for Doctoral Dissertation
2017-2018
NGR6104 State of the Science in Nursing
2016
NGR7835 Nurse Scientist and Scholar II
Teaching Philosophy
Through my teaching activities, I facilitate learner-centered opportunities to advance their knowledge and skills over their lifetime. I use experiential and multimedia approaches to maximize the learner’s preferred learning approach while expanding their ability to learn via other approaches. I emphasize learning to be a member of team-based work with capacity for role flexibility–leading at times and supporting the leader at others–toward goal directed outcomes and taking advantage of serendipity.

Research Profile

Use of informatics to promote patient-centered care; pain assessment; palliative and end-of-life care; biobehavioral therapies for cancer pain; behavioral correlates of cancer pain; sickle cell disease pain mechanisms, assessment and management; reproductive choices for people with sickle cell disease or sickle cell trait; intervention research.

Areas of Interest
  • Use of informatics to promote patient-centered care; pain assessment; palliative and end-of-life care; biobehavioral therapies for cancer pain; behavioral correlates of cancer pain; sickle cell disease pain mechanisms, assessment and management; reproductive choices for people with sickle cell disease or sickle cell trait; intervention research.
Open Researcher and Contributor ID (ORCID)

0000-0002-3954-8933

Publications

2024
Adherence to a reproductive health intervention for young adults with sickle cell.
Journal of the American Association of Nurse Practitioners. [DOI] 10.1097/JXX.0000000000000997. [PMID] 38408228.
2024
Dysphagia in patients with sickle cell disease: An understudied problem.
Journal of the National Medical Association. [DOI] 10.1016/j.jnma.2023.11.005. [PMID] 38262892.
2024
Examining Moderation of Dignity Therapy Effects by Symptom Burden or Religious/Spiritual Struggles.
Journal of pain and symptom management. 67(4):e333-e340 [DOI] 10.1016/j.jpainsymman.2024.01.003. [PMID] 38215893.
2024
Perceptions of Palliative Care: Demographics and Health Status Among the General Population in Florida and the United States
American Journal of Hospice and Palliative Medicine®. 41(4):363-372 [DOI] 10.1177/10499091231186819. [PMID] 37379569.
2024
Social network analysis of the CaRE2 health equity center: Team science in full display.
Clinical and translational science. 17(3) [DOI] 10.1111/cts.13747. [PMID] 38445540.
2023
A descriptive study of physical function and performance in older black men with low back pain
Geriatric Nursing. 53:78-84 [DOI] 10.1016/j.gerinurse.2023.06.021. [PMID] 37454422.
2023
Adolescents’ practical knowledge of asthma self-management and experiences in the context of acute asthma: a qualitative content analysis
Journal of Asthma. 60(2):277-287 [DOI] 10.1080/02770903.2022.2045309. [PMID] 35195484.
2023
Advancing Palliative Care Systematically Using Education Through a Grassroots Coalition.
Palliative medicine reports. 4(1):89-91 [DOI] 10.1089/pmr.2022.0055. [PMID] 36969739.
2023
An alcohol dehydrogenase 7 gene polymorphism associates with both acute and chronic pain in sickle cell disease.
Pharmacogenomics. 24(12):641-649 [DOI] 10.2217/pgs-2023-0084. [PMID] 37712142.
2023
Association of Medication Adherence With HbA1c Control Among American Indian Adults With Type 2 Diabetes Using Tribal Health Services.
Diabetes care. 46(6):1245-1251 [DOI] 10.2337/dc22-1885. [PMID] 37068266.
2023
Avoidance-Endurance Model in Older Black Men with Low Back Pain: Exploring Relationships.
Journal of racial and ethnic health disparities. 10(3):1310-1318 [DOI] 10.1007/s40615-022-01316-4. [PMID] 35501598.
2023
Candidate gene association study suggests potential role of dopamine beta-hydroxylase in pain heterogeneity in sickle cell disease.
Frontiers in genetics. 14 [DOI] 10.3389/fgene.2023.1193603. [PMID] 37384335.
2023
CHOICES for sickle cell reproductive health: A protocol of a randomized preconception intervention model for a single gene disorder
PLOS ONE. 18(12) [DOI] 10.1371/journal.pone.0294907. [PMID] 38060589.
2023
Cognitive Testing of PAIN Report It-Spanish in Monolingual Hispanic Adults.
Cancer nursing. 46(5):364-374 [DOI] 10.1097/NCC.0000000000001123. [PMID] 37607372.
2023
Cost considerations for implementing dignity therapy in palliative care: Insights and implications
Palliative and Supportive Care. 1-5 [DOI] 10.1017/s1478951523001177.
2023
Death Anxiety and Correlates in Cancer Patients Receiving Palliative Care.
Journal of palliative medicine. 26(2):235-243 [DOI] 10.1089/jpm.2022.0052. [PMID] 36067074.
2023
Defining global strategies to improve outcomes in sickle cell disease: a Lancet Haematology Commission.
The Lancet. Haematology. 10(8):e633-e686 [DOI] 10.1016/S2352-3026(23)00096-0. [PMID] 37451304.
2023
Engaging Mortality: Effective Implementation of Dignity Therapy
Journal of Palliative Medicine. [DOI] 10.1089/jpm.2023.0336. [PMID] 37676977.
2023
Examining Care Planning Efficiency and Clinical Decision Support Adoption in a System Tailoring to Nurses’ Graph Literacy: National, Web-Based Randomized Controlled Trial
Journal of Medical Internet Research. 25 [DOI] 10.2196/45043. [PMID] 37566456.
2023
Feasibility of Nurse-led Development of Custom Virtual Reality Experiences for Health Care Interventions.
The Journal of nursing education. 1-4 [DOI] 10.3928/01484834-20230712-10. [PMID] 37738044.
2023
Florida-California Cancer Health Equity Center (CaRE2) Community Scientist Research Advocacy Program.
Journal of cancer education : the official journal of the American Association for Cancer Education. 38(5):1429-1439 [DOI] 10.1007/s13187-023-02351-3. [PMID] 37642919.
2023
Florida-California Cancer Research, Education and Engagement (CaRE2) Health Equity Center: Structure, Innovations, and Initial Outcomes.
Cancer control : journal of the Moffitt Cancer Center. 30 [DOI] 10.1177/10732748231197878. [PMID] 37703814.
2023
Improvement Opportunities for PAINReportIt® Delivered on a Wireless Tablet: Rated by Black Older Men With Low Back Pain.
Research in gerontological nursing. 16(3):108-114 [DOI] 10.3928/19404921-20230405-03. [PMID] 37040308.
2023
Medication Adherence in American Indians With Type 2 Diabetes: An Integrative Review.
Diabetes spectrum : a publication of the American Diabetes Association. 36(2):193-200 [DOI] 10.2337/ds21-0096. [PMID] 37193204.
2023
Method of Developing a Culturally Tailored Diabetes Intervention for American Indians.
Progress in community health partnerships : research, education, and action. 17(1):173-178 [DOI] 10.1353/cpr.2023.0022. [PMID] 37462586.
2023
Quantification of Patient-Reported Pain Locations: Development of an Automated Measurement Method.
Computers, informatics, nursing : CIN. 41(5):346-355 [DOI] 10.1097/CIN.0000000000000875. [PMID] 36067491.
2023
Single nucleotide polymorphisms and sickle cell disease-related pain: a systematic review.
Frontiers in pain research (Lausanne, Switzerland). 4 [DOI] 10.3389/fpain.2023.1223309. [PMID] 37781219.
2023
Unraveling Racial Disparities in Supportive Care Medication Use among End-of-Life Pancreatic Cancer Patients: Focus on Pain Management and Psychiatric Therapies
Cancer Epidemiology, Biomarkers & Prevention. 32(12):1675-1682 [DOI] 10.1158/1055-9965.epi-23-0251.
2023
Validation of the tablet-based Turkish-PAINReportIt® for lung cancer patients after thoracotomy in Turkey
Applied Nursing Research. 70 [DOI] 10.1016/j.apnr.2023.151673. [PMID] 36933901.
2023
Women’s Experience of Living with Vulvodynia Pain: Why They Participated in a Randomized Controlled Trial of Acupuncture.
Journal of integrative and complementary medicine. 29(1):50-54 [DOI] 10.1089/jicm.2022.0647. [PMID] 36130137.
2022
A Novel Measure of Pain Location in Adults with Sickle Cell Disease
Pain Management Nursing. 23(6):693-702 [DOI] 10.1016/j.pmn.2022.09.004. [PMID] 36261305.
2022
A scoping review on the relationship between race/ethnicity and the receipt of supportive care medications during cancer treatment: Implications for the clinical pharmacist
JACCP: JOURNAL OF THE AMERICAN COLLEGE OF CLINICAL PHARMACY. 5(12):1284-1296 [DOI] 10.1002/jac5.1727. [PMID] 36844700.
2022
A Stress and Pain Self-management mHealth App for Adult Outpatients With Sickle Cell Disease: Protocol for a Randomized Controlled Study
JMIR Research Protocols. 11(7) [DOI] 10.2196/33818. [PMID] 35904878.
2022
Adherence to Analgesics Among Outpatients Seriously Ill With Cancer.
Cancer nursing. 45(5):337-344 [DOI] 10.1097/NCC.0000000000001064. [PMID] 35175950.
2022
Analysis of AVPR1A, thermal and pressure pain thresholds, and stress in sickle cell disease.
Frontiers in pain research (Lausanne, Switzerland). 3 [DOI] 10.3389/fpain.2022.1060245. [PMID] 36688082.
2022
Characteristics associated with the perceived likelihood to become parents among young adults with sickle cell disease or sickle cell trait in the USA.
Journal of genetic counseling. 31(3):689-697 [DOI] 10.1002/jgc4.1535. [PMID] 34826361.
2022
Conducting a representative national randomized control trial of tailored clinical decision support for nurses remotely: Methods and implications.
Contemporary clinical trials. 118 [DOI] 10.1016/j.cct.2022.106712. [PMID] 35235823.
2022
Description of a training protocol to improve research reproducibility for dignity therapy: an interview-based intervention
Palliative and Supportive Care. 20(2):178-188 [DOI] 10.1017/s1478951521000614.
2022
Developing the Florida Academic Cancer Center Alliance Health Disparities Common Measure: The Florida Health and Ancestry Survey.
Cancer control : journal of the Moffitt Cancer Center. 29 [DOI] 10.1177/10732748221110897. [PMID] 35758601.
2022
Dignity therapy intervention fidelity: a cross-sectional descriptive study with older adult outpatients with cancer.
BMC palliative care. 21(1) [DOI] 10.1186/s12904-021-00888-y. [PMID] 35016670.
2022
Empathic communication in dignity therapy: Feasibility of measurement and descriptive findings
Palliative and Supportive Care. 20(3):321-327 [DOI] 10.1017/s1478951521001188.
2022
Existential Quality of Life and Associated Factors in Cancer Patients Receiving Palliative Care.
Journal of pain and symptom management. 63(1):61-70 [DOI] 10.1016/j.jpainsymman.2021.07.016. [PMID] 34332045.
2022
Factors associated with young adult engagement with a web-based sickle cell reproductive health intervention.
PEC innovation. 1 [DOI] 10.1016/j.pecinn.2022.100063. [PMID] 36618121.
2022
Feasibility and Burden of Lay Caregivers Providing Daily Massages to Patients With Cancer Receiving Hospice and Palliative Care
American Journal of Hospice and Palliative Medicine®. 39(12):1475-1483 [DOI] 10.1177/10499091221105881. [PMID] 35613662.
2022
HUMAN STUDY COMT and DRD3 haplotype-associated pain intensity and acute care utilization in adult sickle cell disease.
Experimental biology and medicine (Maywood, N.J.). 247(17):1601-1608 [DOI] 10.1177/15353702221080716. [PMID] 35285297.
2022
Image-based documentation of vulvodynia pain location.
Pain management. 12(4):417-424 [DOI] 10.2217/pmt-2021-0110. [PMID] 35060761.
2022
Influence of Haptoglobin Polymorphism on Stroke in Sickle Cell Disease Patients
Genes. 13(1) [DOI] 10.3390/genes13010144. [PMID] 35052484.
2022
Learning Pain from Action Unit Combinations: A Weakly Supervised Approach via Multiple Instance Learning
IEEE Transactions on Affective Computing. 13(1):135-146 [DOI] 10.1109/taffc.2019.2949314. [PMID] 35242282.
2022
Letter to the Editor: Feasibility of Dignity Therapy to Reduce Death Anxiety.
Journal of palliative medicine. 25(10):1458-1459 [DOI] 10.1089/jpm.2022.0263. [PMID] 36190483.
2022
Medication Adherence and Cardiometabolic Control Indicators Among American Indian Adults Receiving Tribal Health Services: Protocol for a Longitudinal Electronic Health Records Study
JMIR Research Protocols. 11(10) [DOI] 10.2196/39193. [PMID] 36279173.
2022
Nursing Education for the Acute Care Nurse on Pain Mechanisms of Sickle Cell Disease.
Journal of continuing education in nursing. 53(3):137-144 [DOI] 10.3928/00220124-20220210-09. [PMID] 35244458.
2022
Protocol for double-blind RCT of acupuncture for vulvodynia.
Contemporary clinical trials communications. 30 [DOI] 10.1016/j.conctc.2022.101029. [PMID] 36387991.
2022
Quality of Life for Older Cancer Patients: Relation of Psychospiritual Distress to Meaning-Making During Dignity Therapy
American Journal of Hospice and Palliative Medicine®. 39(1):54-61 [DOI] 10.1177/10499091211011712. [PMID] 33926243.
2022
Reduced Cancer-Related Fatigue after Tablet-Based Exercise Education for Patients.
Cancer control : journal of the Moffitt Cancer Center. 29 [DOI] 10.1177/10732748221087054. [PMID] 35414203.
2022
Sociodemographic and Clinical Characteristics Associated With Worst Pain Intensity Among Cancer Patients
Pain Management Nursing. 23(4):424-429 [DOI] 10.1016/j.pmn.2021.11.006. [PMID] 35227646.
2022
Spiritual Interventions Delivered by Nurses to Address Patients’ Needs in Hospitals or Long-Term Care Facilities: A Systematic Review.
Journal of palliative medicine. 25(4):662-677 [DOI] 10.1089/jpm.2021.0578. [PMID] 35085471.
2022
Tailored Parenting Plans of Young Adults With Sickle Cell Disease or Sickle Cell Trait.
Computers, informatics, nursing : CIN. 40(9):633-640 [DOI] 10.1097/CIN.0000000000000933. [PMID] 35930415.
2022
What did the pandemic teach us about effective health communication? Unpacking the COVID-19 infodemic.
BMC public health. 22(1) [DOI] 10.1186/s12889-022-14707-3. [PMID] 36514047.
2021
Advance Care Planning for African American Caregivers of Relatives With Dementias: Cluster Randomized Controlled Trial.
The American journal of hospice & palliative care. 38(6):547-556 [DOI] 10.1177/1049909120916127. [PMID] 32308012.
2021
Association of Race with End-of-Life Treatment Preferences in Older Adults with Cancer Receiving Outpatient Palliative Care.
Journal of palliative medicine. 24(8):1174-1182 [DOI] 10.1089/jpm.2020.0542. [PMID] 33760658.
2021
Clinical efficacy and implementation issues of an electronic pain reporting device among outpatients with cancer
Supportive Care in Cancer. 29(9):5227-5235 [DOI] 10.1007/s00520-021-06075-2. [PMID] 33646365.
2021
Critical Role of Hemopexin Mediated Cytoprotection in the Pathophysiology of Sickle Cell Disease
International Journal of Molecular Sciences. 22(12) [DOI] 10.3390/ijms22126408. [PMID] 34203861.
2021
Developing a Novel Framework for an Undergraduate Cancer Research Education and Engagement Program for Underrepresented Minority Students: the Florida-California CaRE2 Research Education Core (REC) Training Program.
Journal of cancer education : the official journal of the American Association for Cancer Education. 36(5):914-919 [DOI] 10.1007/s13187-020-01762-w. [PMID] 32430639.
2021
Development of an Online Reproductive Health Intervention for Individuals with Sickle Cell Disease or Trait.
Women's health reports (New Rochelle, N.Y.). 2(1):142-148 [DOI] 10.1089/whr.2020.0098. [PMID] 34036297.
2021
Feasibility of the Web-Based Intervention Designed to Educate and Improve Adherence Through Learning to Use Continuous Glucose Monitor (IDEAL CGM) Training and Follow-Up Support Intervention: Randomized Controlled Pilot Study
JMIR Diabetes. 6(1) [DOI] 10.2196/15410. [PMID] 33560234.
2021
Following the Breadcrumbs of Palliative Care Financial Sustainability to Big Data.
Journal of palliative medicine. 24(5):649-650 [DOI] 10.1089/jpm.2021.0018. [PMID] 33945316.
2021
Fostering Existential Maturity to Manage Terror in a Pandemic.
Journal of palliative medicine. 24(2):211-217 [DOI] 10.1089/jpm.2020.0263. [PMID] 32552500.
2021
Geographic Variation in Knowledge of Palliative Care Among US Adults: Findings From 2018 Health Information National Trends Survey.
The American journal of hospice & palliative care. 38(3):291-299 [DOI] 10.1177/1049909120946266. [PMID] 32757758.
2021
Geographic variation in palliative care delivery among patients diagnosed with metastatic lung cancer in the USA: Medicare population-based study.
Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer. 29(2):813-821 [DOI] 10.1007/s00520-020-05549-z. [PMID] 32495033.
2021
Interim Analysis of Attrition Rates in Palliative Care Study on Dignity Therapy
American Journal of Hospice and Palliative Medicine®. 38(12):1503-1508 [DOI] 10.1177/1049909121994309. [PMID] 33557587.
2021
Multidimensional Pain Characteristics in Older Adults with Chronic Venous Leg Ulcers.
Advances in wound care. 10(10):544-556 [DOI] 10.1089/wound.2020.1355. [PMID] 33975442.
2021
Pain, symptom distress, and pain barriers by age among patients with cancer receiving hospice care: Comparison of baseline data.
Journal of geriatric oncology. 12(7):1068-1075 [DOI] 10.1016/j.jgo.2021.04.008. [PMID] 33967022.
2021
Prevalence of violent advertisements in New York City subways.
Health promotion perspectives. 11(2):219-229 [DOI] 10.34172/hpp.2021.27. [PMID] 34195046.
2021
Prevalence, Predictors and Correlates of Religious and Spiritual Struggles in Palliative Cancer Patients.
Journal of pain and symptom management. 62(3):e139-e147 [DOI] 10.1016/j.jpainsymman.2021.04.024. [PMID] 33984462.
2021
Reflections of Healthcare Experiences of African Americans With Sickle Cell Disease or Cancer: A Qualitative Study.
Cancer nursing. 44(1):E53-E61 [DOI] 10.1097/NCC.0000000000000750. [PMID] 31743153.
2021
Sublingual Versus Swallowed Morphine: A Comparison.
Cancer nursing. 44(1):E13-E22 [DOI] 10.1097/NCC.0000000000000784. [PMID] 31895174.
2021
The Crisis of Sickle Cell Disease in Africa from Insights into Primary Prevention in Ghana and Nigeria: Notes from the Field.
Journal of immigrant and minority health. 23(4):871-878 [DOI] 10.1007/s10903-021-01186-8. [PMID] 33743139.
2020
A QST-based Pain Phenotype in Adults With Sickle Cell Disease: Sensitivity and Specificity of Quality Descriptors.
Pain practice : the official journal of World Institute of Pain. 20(2):168-178 [DOI] 10.1111/papr.12841. [PMID] 31553824.
2020
A Stepped-Wedge Randomized Controlled Trial: Effects of eHealth Interventions for Pain Control Among Adults With Cancer in Hospice.
Journal of pain and symptom management. 59(3):626-636 [DOI] 10.1016/j.jpainsymman.2019.10.028. [PMID] 31711969.
2020
Double-blinding of an acupuncture randomized controlled trial optimized with clinical translational science award resources.
Clinical trials (London, England). 17(5):545-551 [DOI] 10.1177/1740774520934910. [PMID] 32650673.
2020
Elderly Medication Adherence Intervention Using the My Interventional Drug-Eluting Stent Educational App: Multisite Randomized Feasibility Trial
JMIR mHealth and uHealth. 8(6) [DOI] 10.2196/15900. [PMID] 32579120.
2020
Feasibility and preliminary outcomes of an integrated pediatric sickle cell disease and pulmonary care clinic for children with sickle cell disease.
Pediatric blood & cancer. 67(11) [DOI] 10.1002/pbc.28672. [PMID] 32886403.
2020
Hospitalized patients quantify verbal pain intensity descriptors: methodological issues and values for 26 descriptors.
Pain. 161(2):281-287 [DOI] 10.1097/j.pain.0000000000001716. [PMID] 31599851.
2020
Keys to Recruiting and Retaining Seriously Ill African Americans With Sickle Cell Disease in Longitudinal Studies: Respectful Engagement and Persistence.
The American journal of hospice & palliative care. 37(2):123-128 [DOI] 10.1177/1049909119868657. [PMID] 31394904.
2020
Neuropathic Pain Screening: Construct Validity in Patients With Sickle Cell Disease.
Western journal of nursing research. 42(2):125-130 [DOI] 10.1177/0193945919836446. [PMID] 30900520.
2020
Nursing Care for Hospitalized Older Adults With and Without Cognitive Impairment.
Nursing research. 69(2):116-126 [DOI] 10.1097/NNR.0000000000000402. [PMID] 31972847.
2020
Patients and Caregivers Rate the PAINReportIt Wireless Internet-Enabled Tablet as a Method for Reporting Pain During End-of-Life Cancer Care.
Cancer nursing. 43(5):419-424 [DOI] 10.1097/NCC.0000000000000743. [PMID] 31517649.
2020
Phenylethanolamine N-methyltransferase gene polymorphisms associate with crisis pain in sickle cell disease patients.
Pharmacogenomics. 21(4):269-278 [DOI] 10.2217/pgs-2019-0096. [PMID] 32162598.
2020
Randomized clinical trial of computerized PAINRelieveIt® for patients with sickle cell disease: PAINReportIt® and PAINUCope®.
Patient education and counseling. 103(1):136-144 [DOI] 10.1016/j.pec.2019.08.021. [PMID] 31451364.
2020
Randomized Pilot Study: A Mobile Technology-based Self-management Intervention for Sickle Cell Pain.
Western journal of nursing research. 42(8):629-639 [DOI] 10.1177/0193945919878821. [PMID] 31583977.
2020
S100B single nucleotide polymorphisms exhibit sex-specific associations with chronic pain in sickle cell disease in a largely African-American cohort
PLOS ONE. 15(5) [DOI] 10.1371/journal.pone.0232721. [PMID] 32379790.
2020
Sensitivities to Thermal and Mechanical Stimuli: Adults With Sickle Cell Disease Compared to Healthy, Pain-Free African American Controls
The Journal of Pain. 21(9-10):957-967 [DOI] 10.1016/j.jpain.2019.11.002. [PMID] 31733363.
2020
Spirometry use in Patients with Sickle Cell Disease with and without asthma and acute chest syndrome: A Multicenter Study.
EJHaem. 1(1):239-242 [DOI] 10.1002/jha2.42. [PMID] 32924025.
2020
The health care cost of palliative care for cancer patients: a systematic review.
Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer. 28(10):4561-4573 [DOI] 10.1007/s00520-020-05512-y. [PMID] 32440909.
2020
Timing, Costs, and Survival Outcome of Specialty Palliative Care in Medicare Beneficiaries With Metastatic Non–Small-Cell Lung Cancer
JCO Oncology Practice. 16(12):e1532-e1542 [DOI] 10.1200/op.20.00298.
2020
Timing, Costs, and Survival Outcome of Specialty Palliative Care in Medicare Beneficiaries With Metastatic Non–Small-Cell Lung Cancer
JCO Oncology Practice. 16(12):e1532-e1542 [DOI] 10.1200/op.20.00298.
2019

Thermal and mechanical quantitative sensory testing values among healthy African American adults

Journal of Pain Research. Volume 12:2511-2527 [DOI] 10.2147/jpr.s211855.
2019
Beta2-Adrenergic Receptor Polymorphisms and Haplotypes Associate With Chronic Pain in Sickle Cell Disease.
Frontiers in pharmacology. 10 [DOI] 10.3389/fphar.2019.00084. [PMID] 30837870.
2019
Biobehavioral Mechanisms Associated With Nonhealing Wounds and Psychoneurologic Symptoms (Pain, Cognitive Dysfunction, Fatigue, Depression, and Anxiety) in Older Individuals With Chronic Venous Leg Ulcers.
Biological research for nursing. 21(4):407-419 [DOI] 10.1177/1099800419853881. [PMID] 31142148.
2019
Developing a culturally tailored multigenerational intervention to prevent and manage type 2 diabetes in American Indian families living in rural settings: Findings from a focus group study.
Research in nursing & health. 42(3):226-233 [DOI] 10.1002/nur.21941. [PMID] 30854672.
2019
Dignity Therapy Led by Nurses or Chaplains for Elderly Cancer Palliative Care Outpatients: Protocol for a Randomized Controlled Trial
JMIR Research Protocols. 8(4) [DOI] 10.2196/12213. [PMID] 30994466.
2019
Human Factors Associated with Continuous Glucose Monitor Use in Patients with Diabetes: A Systematic Review.
Diabetes technology & therapeutics. 21(10):589-601 [DOI] 10.1089/dia.2019.0136. [PMID] 31335196.
2019
Knowledge of Palliative Care Among American Adults: 2018 Health Information National Trends Survey.
Journal of pain and symptom management. 58(1):39-47.e3 [DOI] 10.1016/j.jpainsymman.2019.03.014. [PMID] 30922703.
2019
Low Rates of Patient-Reported Physician–Patient Discussion about Lung Cancer Screening among Current Smokers: Data from Health Information National Trends Survey
Cancer Epidemiology Biomarkers & Prevention. 28(5):963-973 [DOI] 10.1158/1055-9965.epi-18-0629.
2019
Low Rates of Patient-Reported Physician–Patient Discussion about Lung Cancer Screening among Current Smokers: Data from Health Information National Trends Survey
Cancer Epidemiology, Biomarkers & Prevention. 28(5):963-973 [DOI] 10.1158/1055-9965.epi-18-0629.
2019
Pain Quality by Location in Outpatients with Cancer.
Pain management nursing : official journal of the American Society of Pain Management Nurses. 20(5):425-431 [DOI] 10.1016/j.pmn.2019.04.007. [PMID] 31160180.
2019
Patterns of Postdiagnosis Depression Among Late-Stage Cancer Patients: Do Racial/Ethnic and Sex Disparities Exist?
American journal of clinical oncology. 42(8):675-681 [DOI] 10.1097/COC.0000000000000569. [PMID] 31305288.
2019
Relationship of Pain Quality Descriptors and Quantitative Sensory Testing: Sickle Cell Disease.
Nursing research. 68(5):365-373 [DOI] 10.1097/NNR.0000000000000375. [PMID] 31283720.
2019
Secondary use of standardized nursing care data for advancing nursing science and practice: a systematic review.
Journal of the American Medical Informatics Association : JAMIA. 26(11):1401-1411 [DOI] 10.1093/jamia/ocz086. [PMID] 31188439.
2019
Sensory pain characteristics of vulvodynia and their association with nociceptive and neuropathic pain: an online survey pilot study.
Pain reports. 4(2) [DOI] 10.1097/PR9.0000000000000713. [PMID] 31041417.
2019
Testing Tablet-based Software to Help Reduce Hospice Patients’ Pain
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2019
Thermal and mechanical quantitative sensory testing values among healthy African American adults.
Journal of Pain Research. Volume 12:2511-2527 [DOI] 10.2147/jpr.s211855.
2019
Utilization pattern and service settings of palliative care for patients with metastatic non-small cell lung cancer.
Cancer. 125(24):4481-4489 [DOI] 10.1002/cncr.32478. [PMID] 31449674.
2019
Vasopressin SNP pain factors and stress in sickle cell disease.
PloS one. 14(11) [DOI] 10.1371/journal.pone.0224886. [PMID] 31710639.
2018
A Shovel-Ready Solution to Fill the Nursing Data Gap in the Interdisciplinary Clinical Picture.
International journal of nursing knowledge. 29(1):49-58 [DOI] 10.1111/2047-3095.12168. [PMID] 28093877.
2018
Acceptability of Clinical Decision Support Interface Prototypes for a Nursing Electronic Health Record to Facilitate Supportive Care Outcomes
International Journal of Nursing Knowledge. 29(4):242-252 [DOI] 10.1111/2047-3095.12178. [PMID] 28926204.
2018
Continuity Index Measures in the Acute Care Hospital Setting: An Analytic Review and Tests Using Electronic Health Record Data and Computer Simulation.
Journal of nursing measurement. 26(1):20-35 [DOI] 10.1891/1061-3749.26.1.20. [PMID] 29724276.
2018
Differences in Sensory Pain, Expectation, and Satisfaction Reported by Outpatients with Cancer or Sickle Cell Disease
Pain Management Nursing. 19(4):322-332 [DOI] 10.1016/j.pmn.2017.11.010. [PMID] 29501359.
2018
Dignity Impact as a Primary Outcome Measure for Dignity Therapy.
The American journal of hospice & palliative care. 35(11):1417-1420 [DOI] 10.1177/1049909118777987. [PMID] 29793345.
2018
Double-blind acupuncture needles: a multi-needle, multi-session randomized feasibility study.
Pilot and feasibility studies. 4 [DOI] 10.1186/s40814-018-0265-9. [PMID] 29686883.
2018
Effects of Dignity Therapy on Family Members: A Systematic Review.
Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association. 20(6):542-547 [DOI] 10.1097/NJH.0000000000000469. [PMID] 30379798.
2018
Genetic variants of GCH1 associate with chronic and acute crisis pain in African Americans with sickle cell disease.
Experimental hematology. 66:42-49 [DOI] 10.1016/j.exphem.2018.07.004. [PMID] 30031848.
2018
Glucocorticoid receptor single nucleotide polymorphisms are associated with acute crisis pain in sickle cell disease.
Pharmacogenomics. 19(13):1003-1011 [DOI] 10.2217/pgs-2018-0064. [PMID] 30079801.
2018
Learning optimal opioid prescribing and monitoring: a simulation study of medical residents.
JAMIA open. 1(2):246-254 [DOI] 10.1093/jamiaopen/ooy026. [PMID] 31984336.
2018
Opioid doses and acute care utilization outcomes for adults with sickle cell disease: ED versus acute care unit.
The American journal of emergency medicine. 36(1):88-92 [DOI] 10.1016/j.ajem.2017.07.037. [PMID] 28802541.
2018
Pancreatic Cancer Related Health Disparities: A Commentary.
Cancers. 10(7) [DOI] 10.3390/cancers10070235. [PMID] 30021952.
2018
Response To: Letter to The Editor – Comments on The Use of LOINC and SNOMED CT for Representing Nursing Data.
International journal of nursing knowledge. 29(2):86-88 [DOI] 10.1111/2047-3095.12182. [PMID] 28856824.
2018
The AVPR1A Gene and Its Single Nucleotide Polymorphism rs10877969: A Literature Review of Associations with Health Conditions and Pain
Pain Management Nursing. 19(4):430-444 [DOI] 10.1016/j.pmn.2018.01.003. [PMID] 29503216.
2018
Transient receptor potential polymorphism and haplotype associate with crisis pain in sickle cell disease.
Pharmacogenomics. 19(5):401-411 [DOI] 10.2217/pgs-2017-0198. [PMID] 29620434.
2018
Treatment-Seeking Behaviors of Persons With Rheumatoid Arthritis.
Journal of holistic nursing : official journal of the American Holistic Nurses' Association. 36(2):179-191 [DOI] 10.1177/0898010117693539. [PMID] 28506103.
2017
Acupuncture and Acupressure in Labor.
Journal of midwifery & women's health. 62(1):12-28 [DOI] 10.1111/jmwh.12545. [PMID] 28002621.
2017
Coping with Pain in the Face of Healthcare Injustice in Patients with Sickle Cell Disease.
Journal of immigrant and minority health. 19(6):1449-1456 [DOI] 10.1007/s10903-016-0432-0. [PMID] 27215766.
2017
Do Vulvodynia TCM Patterns Differ by Pain Types? Beginning Evidence Supporting the Concept.
Journal of alternative and complementary medicine (New York, N.Y.). 23(5):380-384 [DOI] 10.1089/acm.2015.0353. [PMID] 28294632.
2017
Evidence of Progress in Making Nursing Practice Visible Using Standardized Nursing Data: a Systematic Review.
AMIA … Annual Symposium proceedings. AMIA Symposium. 2017:1205-1214 [PMID] 29854189.
2017
Framework for Mining and Analysis of Standardized Nursing Care Plan Data.
Western journal of nursing research. 39(1):20-41 [DOI] 10.1177/0193945916672828. [PMID] 27756852.
2017
Implementing the PAIN RelieveIt Randomized Controlled Trial in Hospice Care: Mechanisms for Success and Meeting PCORI Methodology Standards.
Western journal of nursing research. 39(7):924-941 [DOI] 10.1177/0193945916668328. [PMID] 27621272.
2017
Management of Sickle Cell Pain Using Pregabalin: A Pilot Study.
Pain management nursing : official journal of the American Society of Pain Management Nurses. 18(6):391-400 [DOI] 10.1016/j.pmn.2017.07.003. [PMID] 28843636.
2017
Outcomes for End-of-Life Patients with Anticipatory Grieving: Insights from Practice with Standardized Nursing Terminologies within an Interoperable Internet-based Electronic Health Record.
Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association. 19(3):223-231 [DOI] 10.1097/NJH.0000000000000333. [PMID] 28943805.
2017
Pain Intensity and Misconceptions Among Hospice Patients With Cancer and Their Caregivers: Status After 2 Decades.
The American journal of hospice & palliative care. 34(4):318-324 [DOI] 10.1177/1049909116639612. [PMID] 27006391.
2017
Predicting Hospital Re-admissions from Nursing Care Data of Hospitalized Patients.
Advances in data mining. Industrial Conference on Data Mining. 2017:181-193 [DOI] 10.1007/978-3-319-62701-4_14. [PMID] 29104962.
2017
Toward a More Robust and Efficient Usability Testing Method of Clinical Decision Support for Nurses Derived From Nursing Electronic Health Record Data.
International journal of nursing knowledge. 28(4):211-218 [DOI] 10.1111/2047-3095.12146. [PMID] 27337939.
2017
Toward Meaningful Care Plan Clinical Decision Support: Feasibility and Effects of a Simulated Pilot Study.
Nursing research. 66(5):388-398 [DOI] 10.1097/NNR.0000000000000234. [PMID] 28858147.
2017
Trust Building Recruitment Strategies for Researchers Conducting Studies in African American (AA) Churches: Lessons Learned.
The American journal of hospice & palliative care. 34(10):912-917 [DOI] 10.1177/1049909116666799. [PMID] 27577723.
2016
A Systematic Review of the Symptom Distress Scale in Advanced Cancer Studies.
Cancer nursing. 39(4):E9-E23 [DOI] 10.1097/NCC.0000000000000292. [PMID] 26252436.
2016
CaMKIIα underlies spontaneous and evoked pain behaviors in Berkeley sickle cell transgenic mice.
Pain. 157(12):2798-2806 [DOI] 10.1097/j.pain.0000000000000704. [PMID] 27842048.
2016
Caregivers’ perspectives on oral health problems of end-of-life cancer patients.
Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer. 24(11):4769-77 [DOI] 10.1007/s00520-016-3328-6. [PMID] 27358170.
2016
Characterizing the pain score trajectories of hospitalized adult medical and surgical patients: a retrospective cohort study.
Pain. 157(12):2739-2746 [DOI] 10.1097/j.pain.0000000000000693. [PMID] 27548045.
2016
Feasibility of a web-based suicide awareness programme for Asian American college students.
BMJ open. 6(12) [DOI] 10.1136/bmjopen-2016-013466. [PMID] 28003296.
2016
IL1A rs1800587 associates with chronic noncrisis pain in sickle cell disease.
Pharmacogenomics. 17(18):1999-2006 [PMID] 27883292.
2016
Nurses’ Numeracy and Graphical Literacy: Informing Studies of Clinical Decision Support Interfaces.
Journal of nursing care quality. 31(2):124-30 [DOI] 10.1097/NCQ.0000000000000149. [PMID] 26323050.
2016
Nurses’ Pain Management for Hospitalized Elderly Patients With Postoperative Pain.
Western journal of nursing research. 38(11):1409-1432 [DOI] 10.1177/0193945916652896. [PMID] 27298308.
2016
Patient Satisfaction with Pain Level in Patients with Cancer.
Pain management nursing : official journal of the American Society of Pain Management Nurses. 17(3):218-25 [DOI] 10.1016/j.pmn.2016.04.003. [PMID] 27283267.
2016
Patient-Centered Tablet Application for Improving Medication Adherence after a Drug-Eluting Stent.
Frontiers in public health. 4 [DOI] 10.3389/fpubh.2016.00272. [PMID] 28018897.
2016
PKCδ-targeted intervention relieves chronic pain in a murine sickle cell disease model.
The Journal of clinical investigation. 126(8):3053-7 [DOI] 10.1172/JCI86165. [PMID] 27348590.
2016
Reproductive Health CHOICES for Young Adults with Sickle Cell Disease or Trait: Randomized Controlled Trial Outcomes over Two Years.
Journal of genetic counseling. 25(2):325-36 [DOI] 10.1007/s10897-015-9874-0. [PMID] 26310871.
2016
Research to advance health and health care for individuals with sickle cell disease: a drop in the bucket of needed research.
Journal of advanced nursing. 72(6):1396-7 [DOI] 10.1111/jan.12972. [PMID] 27062162.
2016
Safety and Utility of Quantitative Sensory Testing Among Adults With Sickle Cell Disease: Indicators of Neuropathic Pain?
Pain Practice. 16(3):282-293 [DOI] 10.1111/papr.12279. [PMID] 25581383.
2016
Symptom clusters in patients with cancer in the hospice/palliative care setting.
Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer. 24(9):3863-71 [DOI] 10.1007/s00520-016-3210-6. [PMID] 27079581.
2016
Toward understanding family-related characteristics of young adults with sickle-cell disease or sickle-cell trait in the USA.
Journal of clinical nursing. 25(11-12):1587-97 [DOI] 10.1111/jocn.13144. [PMID] 26970444.
2015
Acupuncture for the treatment of vulvodynia: a randomized wait-list controlled pilot study.
The journal of sexual medicine. 12(4):1019-27 [DOI] 10.1111/jsm.12830. [PMID] 25639289.
2015
Care of the human spirit and the role of dignity therapy: a systematic review of dignity therapy research.
BMC palliative care. 14 [DOI] 10.1186/s12904-015-0007-1. [PMID] 25844066.
2015
Composite Pain Index: Reliability, Validity, and Sensitivity of a Patient-Reported Outcome for Research.
Pain medicine (Malden, Mass.). 16(7):1341-8 [DOI] 10.1111/pme.12703. [PMID] 25712169.
2015
Developing Items to Measure Theory of Planned Behavior Constructs for Opioid Administration for Children: Pilot Testing.
Pain management nursing : official journal of the American Society of Pain Management Nurses. 16(6):900-9 [DOI] 10.1016/j.pmn.2015.07.005. [PMID] 26527107.
2015
Development and validation of a virtual human vignette to compare nurses’ assessment and intervention choices for pain in critically ill children.
Simulation in healthcare : journal of the Society for Simulation in Healthcare. 10(1):14-20 [DOI] 10.1097/SIH.0000000000000061. [PMID] 25514587.
2015
Infomarkers for transition to goals consistent with palliative care in dying patients.
Palliative & supportive care. 13(5):1427-34 [DOI] 10.1017/S1478951515000103. [PMID] 25711431.
2015
My Interventional Drug-Eluting Stent Educational App (MyIDEA): Patient-Centered Design Methodology
JMIR mHealth and uHealth. 3(3) [DOI] 10.2196/mhealth.4021. [PMID] 26139587.
2015
Nurse Continuity and Hospital-Acquired Pressure Ulcers: A Comparative Analysis Using an Electronic Health Record “Big Data” Set.
Nursing research. 64(5):361-71 [DOI] 10.1097/NNR.0000000000000112. [PMID] 26325278.
2015
Perceived injustice predicts stress and pain in adults with sickle cell disease.
Pain management nursing : official journal of the American Society of Pain Management Nurses. 16(3):294-306 [DOI] 10.1016/j.pmn.2014.08.004. [PMID] 25439119.
2015
PICU Nurses’ Pain Assessments and Intervention Choices for Virtual Human and Written Vignettes.
Journal of pediatric nursing. 30(4):580-90 [DOI] 10.1016/j.pedn.2015.01.022. [PMID] 25682019.
2015
Predictive Modeling for Comfortable Death Outcome Using Electronic Health Records.
Proceedings. IEEE International Congress on Big Data. 2015:409-415 [PMID] 27500278.
2015
Predictive Modeling for End-of-Life Pain Outcome using Electronic Health Records.
Advances in data mining. Industrial Conference on Data Mining. 9165:56-68 [PMID] 27500287.
2015
Prevalence of pain-related single nucleotide polymorphisms in patients of African origin with sickle cell disease.
Pharmacogenomics. 16(16):1795-806 [DOI] 10.2217/pgs.15.126. [PMID] 26555434.
2015
Proposing a New Conceptual Model and an Exemplar Measure Using Health Information: Technology to Examine the Impact of Relational Nurse Continuity on Hospital-Acquired Pressure Ulcers.
ANS. Advances in nursing science. 38(3):241-51 [DOI] 10.1097/ANS.0000000000000081. [PMID] 26244480.
2015
Use of Simulation to Study Nurses’ Acceptance and Nonacceptance of Clinical Decision Support Suggestions.
Computers, informatics, nursing : CIN. 33(10):465-72 [DOI] 10.1097/CIN.0000000000000185. [PMID] 26361268.
2014
A comprehensive description of postpartum pain after cesarean delivery.
Journal of obstetric, gynecologic, and neonatal nursing : JOGNN. 43(6):729-41 [DOI] 10.1111/1552-6909.12483. [PMID] 25123692.
2014
Adolescent pediatric pain tool for multidimensional measurement of pain in children and adolescents.
Pain management nursing : official journal of the American Society of Pain Management Nurses. 15(3):694-706 [DOI] 10.1016/j.pmn.2013.03.002. [PMID] 23870767.
2014
Advance care treatment plan (ACT-Plan) for African American family caregivers: a pilot study.
Dementia (London, England). 13(1):79-95 [DOI] 10.1177/1471301212449408. [PMID] 24381040.
2014
Death anxiety in hospitalized end-of-life patients as captured from a structured electronic health record: differences by patient and nurse characteristics.
Research in gerontological nursing. 7(5):224-34 [DOI] 10.3928/19404921-20140818-01. [PMID] 25157534.
2014
Does cold hypersensitivity increase with age in sickle cell disease?
Pain. 155(12):2439-2440 [DOI] 10.1016/j.pain.2014.08.010. [PMID] 25172823.
2014
Dopamine D3 receptor Ser9Gly and catechol-o-methyltransferase Val158Met polymorphisms and acute pain in sickle cell disease.
Anesthesia and analgesia. 119(5):1201-7 [DOI] 10.1213/ANE.0000000000000382. [PMID] 25102390.
2014
Evaluating a Clinical Decision Support Interface for End-of-Life Nurse Care.
Extended abstracts on Human factors in computing systems. CHI Conference. 2014:1633-1638 [PMID] 27453959.
2014
Evaluation of the SCKnowIQ tool and reproductive CHOICES intervention among young adults with sickle cell disease or sickle cell trait.
Clinical nursing research. 23(4):421-41 [DOI] 10.1177/1054773813479377. [PMID] 23572406.
2014
Evidence for the existing American Nurses Association-recognized standardized nursing terminologies: a systematic review.
International journal of nursing studies. 51(8):1160-70 [DOI] 10.1016/j.ijnurstu.2013.12.004. [PMID] 24412062.
2014
Integration of NNN into EHRS: how are we doing?: IJNK virtual issue.
International journal of nursing knowledge. 25(2):68-9 [DOI] 10.1111/2047-3095.12039. [PMID] 24828765.
2014
Mechanism-driven phase I translational study of trifluoperazine in adults with sickle cell disease.
European journal of pharmacology. 723:419-24 [DOI] 10.1016/j.ejphar.2013.10.062. [PMID] 24211787.
2014
Oral health conditions affect functional and social activities of terminally ill cancer patients.
Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer. 22(3):803-10 [PMID] 24232310.
2014
Outpatient pain predicts subsequent one-year acute health care utilization among adults with sickle cell disease.
Journal of pain and symptom management. 48(1):65-74 [DOI] 10.1016/j.jpainsymman.2013.08.020. [PMID] 24636960.
2014
Predictors of valid engagement with a video streaming web study among asian american and non-Hispanic white college students.
Computers, informatics, nursing : CIN. 32(4):156-65 [DOI] 10.1097/CIN.0000000000000035. [PMID] 24535027.
2013
A Component-Based Evaluation Protocol for Clinical Decision Support Interfaces.
Design, user experience, and usability : design philosophy, methods, and tools : second international Conference, DUXU 2013, held as part of HCI International 2013, Las Vegas, NV, USA, July 21-26, 2013, Proceedings. Part I. DUXU (Confer…. 8012:232-241 [PMID] 27478882.
2013
Challenges and solutions for using informatics in research.
Western journal of nursing research. 35(6):722-41 [DOI] 10.1177/0193945913477245. [PMID] 23475591.
2013
Current state of pain care for hospitalized patients at end of life.
The American journal of hospice & palliative care. 30(2):128-36 [DOI] 10.1177/1049909112444458. [PMID] 22556281.
2013
Data mining nursing care plans of end-of-life patients: a study to improve healthcare decision making.
International journal of nursing knowledge. 24(1):15-24 [DOI] 10.1111/j.2047-3095.2012.01217.x. [PMID] 23413930.
2013
Reproductive health choices for young adults with sickle cell disease or trait: randomized controlled trial immediate posttest effects.
Nursing research. 62(5):352-61 [DOI] 10.1097/NNR.0b013e3182a0316b. [PMID] 23995469.
2013
ResearchTracking: Monitoring gender and ethnic minority recruitment and retention in cancer symptom studies.
Cancer nursing. 36(3):E1-6 [DOI] 10.1097/NCC.0b013e31826909a8. [PMID] 23051871.
2013
Response to Schiavenato, von Baeyer, and Craig’s letter to the editor.
Western journal of nursing research. 35(3):388-92 [PMID] 23463885.
2012
Automated Detection of Pain from Facial Expressions: A Rule-Based Approach Using AAM.
Proceedings of SPIE–the International Society for Optical Engineering. 8314 [DOI] 10.1117/12.912537. [PMID] 31719714.
2012
Maintaining a consistent big picture: meaningful use of a Web-based POC EHR system.
International journal of nursing knowledge. 23(3):119-33 [DOI] 10.1111/j.2047-3095.2012.01215.x. [PMID] 23043651.
2012
Pain and symptom management in palliative care and at end of life.
Nursing outlook. 60(6):357-64 [DOI] 10.1016/j.outlook.2012.08.002. [PMID] 22985972.
2012
Relationship among Trust in Physicians, Demographics, and End-of-life Treatment Decisions Made by African American Dementia Caregivers.
Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association. 14(3):238-243 [PMID] 24353477.
2012
The McGill Pain Questionnaire as a multidimensional measure in people with cancer: an integrative review.
Pain management nursing : official journal of the American Society of Pain Management Nurses. 13(1):27-51 [DOI] 10.1016/j.pmn.2010.12.003. [PMID] 22341138.
2011
Creative partnerships for funding nursing research.
Western journal of nursing research. 33(1):79-105 [DOI] 10.1177/0193945910377768. [PMID] 20719996.
2011
Differences in pain location, intensity, and quality by pain pattern in outpatients with cancer.
Cancer nursing. 34(3):228-37 [DOI] 10.1097/NCC.0b013e3181faab63. [PMID] 21512345.
2011
Effects of massage on pain, mood status, relaxation, and sleep in Taiwanese patients with metastatic bone pain: a randomized clinical trial.
Pain. 152(10):2432-2442 [DOI] 10.1016/j.pain.2011.06.021. [PMID] 21802850.
2011
Model for the First NIH-funded Center of Excellence in End-of-Life Research.
Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association. 13(1):54-60 [PMID] 23762014.
2011
Pediatric nurses’ beliefs and pain management practices: an intervention pilot.
Western journal of nursing research. 33(6):825-45 [DOI] 10.1177/0193945910391681. [PMID] 21172923.
2011
Presence of neuropathic pain as an underlying mechanism for pain associated with cold weather in patients with sickle cell disease.
Medical hypotheses. 77(4):491-3 [DOI] 10.1016/j.mehy.2011.06.018. [PMID] 21763079.
2011
Repressive coping style: relationships with depression, pain, and pain coping strategies in lung cancer outpatients.
Lung cancer (Amsterdam, Netherlands). 71(2):235-40 [DOI] 10.1016/j.lungcan.2010.05.009. [PMID] 20557973.
2010
A computerized survey of pain in Parkinson’s disease patients: A pilot feasibility study.
Parkinsonism & related disorders. 16(2):139-41 [DOI] 10.1016/j.parkreldis.2009.07.001. [PMID] 19640770.
2010
Anxiety, depression, and pain: differences by primary cancer.
Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer. 18(7):801-10 [DOI] 10.1007/s00520-009-0712-5. [PMID] 19685346.
2010
Cognitive testing of PAINReportIt in adult African Americans with sickle cell disease.
Computers, informatics, nursing : CIN. 28(3):141-50 [DOI] 10.1097/NCN.0b013e3181d7820b. [PMID] 20431356.
2010
Effects of coaching patients with lung cancer to report cancer pain.
Western journal of nursing research. 32(1):23-46 [DOI] 10.1177/0193945909348009. [PMID] 20164474.
2010
Neurobiological mechanisms of pain in sickle cell disease.
Hematology. American Society of Hematology. Education Program. 2010:403-8 [DOI] 10.1182/asheducation-2010.1.403. [PMID] 21239826.
2010
Pain barriers: psychometrics of a 13-item questionnaire.
Nursing research. 59(2):93-101 [DOI] 10.1097/NNR.0b013e3181d1a6de. [PMID] 20216011.
2010
Patient-reported outcomes: descriptors of nociceptive and neuropathic pain and barriers to effective pain management in adult outpatients with sickle cell disease.
Journal of the National Medical Association. 102(1):18-27 [PMID] 20158132.
2010
Pediatric nurses’ cognitive representations of children’s pain.
The journal of pain. 11(9):854-63 [DOI] 10.1016/j.jpain.2009.12.003. [PMID] 20418172.
2010
Reproductive decisions in people with sickle cell disease or sickle cell trait.
Western journal of nursing research. 32(8):1073-90 [DOI] 10.1177/0193945910371482. [PMID] 20702680.
2010
Sickle cell disease: an opportunity for palliative care across the life span.
The Nursing clinics of North America. 45(3):375-97 [DOI] 10.1016/j.cnur.2010.03.003. [PMID] 20804884.
2010
The symptom cluster experience profile framework.
Oncology nursing forum. 37(6):E377-86 [DOI] 10.1188/10.ONF.E377-E386. [PMID] 21059571.
2009
Developing a blended course on dying, loss, and grief.
Nurse educator. 34(3):126-31 [DOI] 10.1097/NNE.0b013e31819fcad1. [PMID] 19412055.
2009
Differences in pain intensity and quality by pain pattern in outpatients with cancer.
Western journal of nursing research. 31(8):1080-1 [DOI] 10.1177/0193945909342508. [PMID] 20008312.
2009
Effects of a full-body massage on pain intensity, anxiety, and physiological relaxation in Taiwanese patients with metastatic bone pain: a pilot study.
Journal of pain and symptom management. 37(4):754-63 [DOI] 10.1016/j.jpainsymman.2008.04.021. [PMID] 19070458.
2009
Extending computer technology to hospice research: interactive pentablet measurement of symptoms by hospice cancer patients in their homes.
Journal of palliative medicine. 12(7):599-602 [DOI] 10.1089/jpm.2009.0006. [PMID] 19594343.
2009
Neuropathic and nociceptive pain in head and neck cancer patients receiving radiation therapy.
Head & neck oncology. 1 [DOI] 10.1186/1758-3284-1-26. [PMID] 19594943.
2009
Predicting survival with the Palliative Performance Scale in a minority-serving hospice and palliative care program.
Journal of pain and symptom management. 37(4):642-8 [DOI] 10.1016/j.jpainsymman.2008.03.023. [PMID] 18823751.
2009
Symptom cluster experience profiles in adult survivors of childhood cancers.
Journal of pain and symptom management. 38(2):258-69 [DOI] 10.1016/j.jpainsymman.2008.09.010. [PMID] 19535218.
2008
Massage for Cancer Pain: A Study with University and Hospice Collaboration.
Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association. 10(4):191-197 [PMID] 19337585.
2008
Systematic review of massage intervention for adult patients with cancer: a methodological perspective.
Cancer nursing. 31(6):E24-35 [DOI] 10.1097/01.NCC.0000339242.51291.85. [PMID] 18987505.
2007
Correlates of physical activity in young adult survivors of childhood cancers.
Oncology nursing forum. 34(5):E60-9 [PMID] 17878118.
2005
Gender differences in symptom experiences of patients with acute coronary syndromes.
Journal of pain and symptom management. 30(6):553-62 [PMID] 16376742.
2004
TNEEL workshop. Interactive methods for teaching end-of-life care.
Nursing education perspectives. 25(1):26-9 [PMID] 15017797.
2003
Clinicians communicating with patients experiencing cancer pain.
Cancer investigation. 21(3):374-81 [PMID] 12901283.
2003
Developing a computerized data collection and decision support system for cancer pain management.
Computers, informatics, nursing : CIN. 21(4):206-17 [PMID] 12869874.
2003
Ethnobotanical knowledge shared widely among Tsimane’ Amerindians, Bolivia.
Science (New York, N.Y.). 299(5613) [PMID] 12637738.
2003
Pain trajectory of Taiwanese with nasopharyngeal carcinoma over the course of radiation therapy.
Journal of pain and symptom management. 25(3):247-55 [PMID] 12614959.
2003
Technology survey of nursing programs: implications for electronic end-of-life teaching tool development.
Computers, informatics, nursing : CIN. 21(1):29-36 [PMID] 12544152.
2003
Usability of a computerized PAINReportIt in the general public with pain and people with cancer pain.
Journal of pain and symptom management. 25(3):213-24 [PMID] 12614956.
2002
Technology available in nursing programs: implications for developing virtual end-of-life educational tools.
Journal of cancer education : the official journal of the American Association for Cancer Education. 17(2):92-6 [PMID] 12092860.
2001
Cancer symptom control: feasibility of a tailored, interactive computerized program for patients.
Family & community health. 24(3):48-62 [PMID] 11563944.
2001
Excellence in teaching end-of-life care: a new multimedia toolkit for nurse educators.
Nursing and health care perspectives. 22(5):226-30 [PMID] 15957398.
2001
Multimedia resources for pain education.
Cancer practice. 9(4):206-10 [PMID] 11879312.
2001
Nociceptive and neuropathic pain in patients with lung cancer: a comparison of pain quality descriptors.
Journal of pain and symptom management. 22(5):899-910 [PMID] 11728793.
2000
Effects of massage on pain intensity, analgesics and quality of life in patients with cancer pain: a pilot study of a randomized clinical trial conducted within hospice care delivery.
The Hospice journal. 15(3):31-53 [PMID] 11315685.
2000
Metastatic bone pain. Meanings associated with self-report and self-management decision making.
Cancer nursing. 23(2):101-8 [PMID] 10763280.
2000
Symptom profile of nasopharyngeal cancer patients during radiation therapy.
Cancer practice. 8(6):274-81 [PMID] 11898144.
1999
Cancer pain and common pain: a comparison of patient-reported intensities.
Oncology nursing forum. 26(4):721-6 [PMID] 10337650.
1996
Advancing nursing practice: acute care nurse practitioners meet challenges at and beyond the health care horizon.
Advanced practice nursing quarterly. 1(4):39-47 [PMID] 9447043.
1996
Use of a computerized digitizer tablet to score and enter visual analogue scale data.
Nursing research. 45(6):370-2 [PMID] 8941313.
1995
Coaching persons with lung cancer to report sensory pain. Literature review and pilot study findings.
Cancer nursing. 18(1):7-15 [PMID] 7866980.
1995
Family members’ perceptions of cancer pain. Comparisons with patient sensory report and by patient psychologic status.
The Nursing clinics of North America. 30(4):625-45 [PMID] 7501532.
1995
Multidisciplinary rounds. Pain assessment and management in a man with a history of alcoholism.
Cancer practice. 3(3):130-3 [PMID] 7599668.
1995
Sublingual and oral morphine administration. Review and new findings.
The Nursing clinics of North America. 30(4):725-43 [PMID] 7501539.
1994
Analgesics for cardiac surgery patients in critical care: describing current practice.
American journal of critical care : an official publication, American Association of Critical-Care Nurses. 3(1):31-9 [PMID] 8118490.
1994
Postoperative analgesics for children and adolescents: prescription and administration.
Journal of pain and symptom management. 9(2):85-95 [PMID] 8021540.
1993
Assessment of postoperation pain in children and adolescents using the adolescent pediatric pain tool.
Nursing research. 42(1):5-9 [PMID] 8424069.
1993
Pharmacological management of cancer pain: summary of the science.
Journal of the National Cancer Institute. 85(14):1117-20 [PMID] 8320740.
1992
Behavior of patients with lung cancer: description and associations with oncologic and pain variables.
Pain. 51(2):231-240 [DOI] 10.1016/0304-3959(92)90264-C. [PMID] 1484719.
1991
Coping strategies of patients with lung cancer-related pain.
The Clinical journal of pain. 7(4):292-9 [PMID] 1809442.
1991
The word-graphic rating scale as a measure of children’s and adolescents’ pain intensity.
Research in nursing & health. 14(5):361-71 [PMID] 1891622.
1990
Cancer pain intensity measurement: concurrent validity of three tools–finger dynamometer, pain intensity number scale, visual analogue scale.
The Hospice journal. 6(1):1-13 [PMID] 2379920.
1990
Measuring pain quality: validity and reliability of children’s and adolescents’ pain language.
Pain. 41(2):151-159 [DOI] 10.1016/0304-3959(90)90019-A. [PMID] 2367141.
1990
Use of the McGill Pain Questionnaire to measure pain: a meta-analysis.
Nursing research. 39(1):36-41 [PMID] 2136771.
1989
Pain location: validity and reliability of body outline markings by hospitalized children and adolescents.
Research in nursing & health. 12(5):307-14 [PMID] 2798951.
1988
Cancer pain control behaviors: description and correlation with pain intensity.
Oncology nursing forum. 15(6):723-31 [PMID] 3205831.
1985
Continuous infusion of spinally administered narcotics for the relief of pain due to malignant disorders.
Cancer. 56(3):696-702 [PMID] 3839163.
Elderly Medication Adherence Intervention Using the My Interventional Drug-Eluting Stent Educational App: Multisite Randomized Feasibility Trial (Preprint)
. [DOI] 10.2196/preprints.15900.
Feasibility of the Web-Based Intervention Designed to Educate and Improve Adherence Through Learning to Use Continuous Glucose Monitor (IDEAL CGM) Training and Follow-Up Support Intervention: Randomized Controlled Pilot Study (Preprint)
. [DOI]  doi: 10.2196/12213.

Grants

Sep 2023 ACTIVE
2/3 Florida-California Cancer Research, Education & Engagement (CaRE2) Health Equity Center
Role: Principal Investigator
Funding: NATL INST OF HLTH NCI
Sep 2022 ACTIVE
Precision Clinical Trial Recruitment to Promote Cancer Health Equity Across Florida
Role: Co-Investigator
Funding: MAYO CLINIC via NATL INST OF HLTH NCI
Sep 2022 – Sep 2023
Precision Clinical Trial Recruitment to Promote Cancer Health Equity Across Florida
Role: Co-Investigator
Funding: NATL INST OF HLTH NCI
Mar 2022 ACTIVE
Medication Adherence and Cardio-Metabolic Control Indicators among Adult American Indians Receiving Tribal Health Services
Role: Co-Investigator
Funding: NATL INST OF HLTH NINR
Sep 2021 ACTIVE
Hybrid Effectiveness-Implementation Trial of Guided Relaxation and Acupuncture for Chronic Sickle Cell Disease Pain
Role: Principal Investigator
Funding: UNIV OF ILLINOIS CHICAGO via NATL INST OF HLTH NCI
Sep 2021 ACTIVE
Dignity Therapy for Older Cancer Patients: Identifying Mechanisms and Moderators
Role: Co-Investigator
Funding: NATL INST OF HLTH NCI
Sep 2021 ACTIVE
CHOICES for Sickle Cell Reproductive Health: RCT of a Preconception Intervention Model for a Single Gene Disorder
Role: Principal Investigator
Funding: NATL INST OF HLTH NHGRI
Sep 2020 – Aug 2021
Hybrid Effectiveness-Implementation Trial of Guided Relaxation and Acupuncture for Chronic Sickle Cell Disease Pain
Role: Principal Investigator
Funding: UNIV OF ILLINOIS CHICAGO via NATL INST OF HLTH NINDS
Sep 2020 ACTIVE
A Stress and Pain Self-management m-Health App for Adult Outpatients with Sickle Cell Disease
Role: Co-Investigator
Funding: NATL INST OF HLTH NINR
Jul 2020 – Jul 2021
Contributions of biopsychosocial factors in sickle cell disease pain
Role: Other
Funding: NATL INST OF HLTH NHLBI
Sep 2019 – Jul 2023
Tailored Clinical Decision Support Formats Designed to Improve Palliative Care for Cancer and Chronically Ill Patients: A Pre-Clinical Test
Role: Co-Investigator
Funding: NATL INST OF HLTH NINR
Aug 2019 – Dec 2020
Patterns of Marijuana Use for HIV Pain: A Mixed Methods Approach
Role: Other
Funding: NATL INST OF HLTH NIDA
Sep 2018 – Aug 2023
2/3 Florida-California Cancer Research, Education & Engagement (CaRE2) Health Equity Center
Role: Principal Investigator
Funding: NATL INST OF HLTH NCI
Apr 2018 ACTIVE
Biobehavioral mechanisms underlying symptoms and healing outcomes in older individuals with CVLU
Role: Co-Investigator
Funding: NATL INST OF HLTH NINR
Sep 2017 – Mar 2021
Evaluating the Tablet-based Turkish-PAINReportIt for Assessing Pain of Lung Cancer Patients Post Thoracotomy in TURKEY
Role: Principal Investigator
Funding: NATL INST OF HLTH NCI
Sep 2017 – Dec 2023
Double-blind Phase 2 RCT: Effect of Acupuncture on Patient Vulvodynia Outcomes
Role: Principal Investigator
Funding: UNIV OF ILLINOIS CHICAGO via NATL INST OF HLTH NICHD
Sep 2016 – Aug 2022
Dignity Therapy RCT led by Nurses or Chaplains for Elderly Cancer Outpatients
Role: Principal Investigator
Funding: NATL INST OF HLTH NCI
Jul 2016 – Jan 2018
Protein kinase mechanisms for chronic pain in sickle cell disease
Role: Principal Investigator
Funding: UNIV OF ILLINOIS URBANA-CHAMPAIGN via NATL INST OF HLTH
Jul 2015 ACTIVE
Florida Academic Cancer Center Alliance Seed Grants
Role: Project Manager
Funding: UF HEALTH SHANDS HOSPITAL
Feb 2015 – May 2019
PHENOTYPIC CHARACTERIZATION OF CHRONIC PAIN IN ADULTS WITHSICKLE CELL DISEASE
Role: Principal Investigator
Funding: UNIV OF ILLINOIS URBANA-CHAMPAIGN via NATL INST OF HLTH NHLBI
Feb 2015 – Aug 2017
TOOLS FOR OPTIMIZING MEDICATION SAFETY (TOP-MEDS)
Role: Principal Investigator
Funding: NORTHWESTERN UNIV via AGENCY FOR HEALTHCARE RES AND QUALITY
Feb 2015 – Apr 2017
Computerized PAIN relievelt protocol for cancer pain control in Hospice
Role: Principal Investigator
Funding: UNIV OF ILLINOIS URBANA-CHAMPAIGN via PATIENT-CENTERED OUTCOMES RES INST
Feb 2015 – Jan 2017
SICKLE CELL REPRODUCTIVE CHOICES: EFFICACY OF A PRIMARY PREVENTION INTERVENTION
Role: Principal Investigator
Funding: UNIV OF ILLINOIS URBANA-CHAMPAIGN via NATL INST OF HLTH
Sep 2014 – Aug 2019
Florida Minority Cancer Research and Training Center: Feasibility Studies
Role: Co-Investigator
Funding: NATL INST OF HLTH NCI

Education

Doctor of Philosophy – Nursing, Cancer Pain Management
1985-1990 · University of California San Francisco
Master of Science – Nursing
1982-1984 · University of California San Francisco
Bachelor of Science in Nursing, Cum Laude
1981-1982 · Mesa College
Associate Degree in Nursing
1974-1977 · University of Hawaii

Contact Details

Phones:
Business:
(352) 273-6401
Emails:
Business:
diwilkie@ufl.edu
Addresses:
Business Mailing:
PO Box 100197
GAINESVILLE FL 32610
Business Street:
PO Box 100197
GAINESVILLE FL 32610